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Research, Advocacy Organizations, Tools, & Our Diagnosis

Information and Tools

We work closely with the Foundation Fighting Blindness, which focuses on research regarding different inherited retinal diseases--having donated almost $2 million to vital research. We are familiar with a lot of the other vision impaired/blind advoca

Living with Stargardt's Disease

We made a small series on YouTube for questions about Stargardt's, you can watch it here. The biggest risk with Stargardt's disease is not the impact on vision, it's the potential impact on one's self-esteem. There are folks with many vision impairme